Christine m
Have you considered contacting and volunteering for you local chapter? I have Lupus and do my best to make people aware. I do the walks at least once a year as well. God bless you for wanting to do the right thing. Good luck.

nalla
Let's hear what you have in mind. I admire that you are putting your energy into this cause and not just staying angry at everything you have been through. It makes me think you were a real strength to all of the people in your family who were struggling in their daily lives. I would love to hear what your plans are and am hoping I can help you out. You're still in my prayers!!!

Dr. Sam
Roseykat, it is wonderful to do something in memory of your sisters. Check out the cff.org site and click on the link to local chapters to see where there is one near you. Be warned, as in any organization, it might be hard to just walk in the door and be accepted as someone who is serious about helping (sad to say), but go anyway. My daughter died almost five years ago and her old grade school just held "Sarah's Walk" this past Friday, which is a walk-a-thon held in her memory to raise money for the CF Foundation. They also give an award to a graduating student every year in her memory. This is odd. I just did a search for "Sarah's Walk" and found out that another school - hours and hours away from us - is also holding a "Sarah's Walk" to raise money for CF. This is for a different Sarah, but it's ironic that both "Sarah's Walks" are for the same cause. When our community built a new hospital, we donated the money to help equip the Pulmonary Function Test Lab and there is a sign stating that the room is in her memory. This doesn't promote CF awareness, but it does preserve her memory in an appropriate location. We continue to support the CF Foundation as well as the CF Center where Sarah was treated for her entire life, as they have active research projects. Maybe you could help raise some money to support CF research. What's your plan?

sliva_dodge
i have cystic fibrosis and i am a 20 year old girl, i have lost 11 young people throughout my adolescent hood who were very close friends, i would love to get awareness out...whats your plan?

rckanddsc
what is your plan? My heart goes out to you and your entire family. I will help if i can!